Saturday, February 21, 2009

A step backwards

Update-

My doctor is telling me that no surgeon will operate on me because it is too complicated. She is recommending that I do radiation to get rid of the nodes on my lungs. I really need the big tumor taken out and some kind of bypass to restore my circulation. I will be meeting with a surgeon soon to get his take on it....and the beat goes on...

Wednesday, February 4, 2009

Graduation Day


This week I stayed in a condo in downtown Salt Lake while I finished my 8th round. I drove myself each morning to the infusion clinic, then hung out with friends and went to see a few movies. I remember saying to my mom after round 1 that I didn't think I could do it again. It has definitely gotten easier and easier especially since I moved to an outpatient schedule on round 5.

Today at the infusion clinic all the nurses sang a graduation song and gave me a diploma. I told them that since I didn't have my video camera that day, they would have to do it again.

Now my doctor is working to have me take part in a clinical trial. As long as I am eligible and it doesn't make me too sick, it should be even easier to manage. This will put off my surgery a few months which means I'll be on blood thinners for a while longer. I may also start meeting with a specialist to try and figure out exactly what my surgical outcome possibilities are. If they can't restore the circulation to my legs then there's no reason to push for moving up surgery.